My Real Life

October 6, 2009

Day One

Filed under: Uncategorized — Amy @ 6:52 am
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So, day one is done and Baby Monkey did great.
We played games, read books, did puzzles, watched movies and had a mice day together.
He’s a trooper.
They wanted him to be sleep deprived as that often triggers seizures, so we were up until 2 am.
The only bad part was that his pulse oxygen monitor kept coming off of his finger while we slept, waking me up with loud beeping every half hour. So, I’m more than a little sleep deprived! The good news is that once he was out, he was out.
We’ll be here until Wednesday. It’s a nice hospital. I’ve only been in the one where I gave birth to all the monkeys. They sent us here because they said thee wouldn’t be as many sick kids and it is quieter. They were right
So, I’ll let you know how today and tomorrow go. They decided to do the MRI last, so I won’t know those results for awhile.
Thanks to you all for your well-wishes. They are much appreciated!!!

September 17, 2009

Update on Real Scary

Filed under: Uncategorized — Amy @ 7:12 am
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So, today was the day that we went to the neurologist with baby Monkey.  Real Man had a doctor appointment in the morning, so we sent him to nursery school and then picked him up before lunch.

Since we had no idea what he was going to have to endure at the hospital, we decided to treat him with lunch at Wendy’s.  That went over very well. 

Wendys1

Not only was he thrilled to be there, but Real Man actually got the chicken sandwich from the commercial.  You know how your burger/sandwich never looks like it does on the big board over the counter or like it does in the commercials?  Well, for the first time ever, Real Man got the dream sandwich. 

Wendys2

We can never go back, however, because anything after that sandwich will be a let down.

After lunch, we headed to the hospital for the appointment.

We went up to the neurology wing and sat in the waiting room.  Off of the main waiting room was a sign that said “Children’s Playtime Waiting Room.”  How exciting!

We drew Baby Monkey’s attention to it and went in with him. 

We were greeted with this sign on the wall:

sign

Ooookkkeeee. 

I get it.  I do.  Swine flu.  Sick kids all playing with the same toys.

So, Baby Monkey played with the one toy that was left.  The one toy that every sick kid who goes in there touches, bites, drools on, sneezes on, coughs on, and bleeds on.

toy

Ah, he’s tough.  He’ll survive.

We get to the hospital, they do the routine check-up stuff like height and weight and then load him up with a bunch of stickers.  They send us up to the neurologist.

So, we met with the neurologist and he asked a bunch of questions and then had Baby Monkey do some neuromotor things like play with little toys, run after a ball, catch a ball and throw a ball.

He said that it was probably a seizure, but that it seems like a one-time deal right now.  He wanted us to get an EEG to rule out anything like epilepsy.  He said if the EEG was clear, and it doesn’t happen again, then we should just relax and pretend like it never happened.  If the EEG shows something, we’ll deal with that.  If the EEG shows nothing, but it does happen again, then we’ll need to come back for MRI and further tests to look for abnormalities in the brain, growths, etc.

So, he calls down to the EEG lab and says he’s going to use his charm to get us in right away so we don’t have to come back.  He tells them “I’ve got an adorable 3 year old here who I’d like to get an EEG for immediately.”  He said that he was sure Baby Monkey would be able to withstand the 40 minutes of the EEG and they said, “Okay…send him down.”

So, we head down to the EEG lab.   We sit down and at first, Baby Monkey just sits there, quietly, looking around.

waiting

Then, he starts putting the stickers on his head, pulling them off, saying “Ouch” when they pull his hair, then putting them back on his head again.

stickers

This continues for about ten minutes. 

Then, the woman who has been watching him the whole time we were there says to us “You know there is a children’s waiting room just around the wall.”

We didn’t know.

We stand up, take three steps, peek around a wall and lo and behold, a beautiful children’s waiting room, complete with actual toys.

Cool toys.

First there was this thing on the wall.

wall

I think I almost had a  seizure watching this thing spin.

Then there was this awesome magnetic table.

table

There were magnets underneath and you had to move the boats around using the magnets.  That was fun.

There were other toys, as well.  Lots with magnets.  I thought that was interesting in a lab where they did lots of electromagnetic testing.  Interesting choices.

Anyway, then we go in.

Now, let me say this:  Lest any of you think that my child was getting a major neurological exam and all I could think about was taking pictures for my blog, the following pictures were taken at the request of Baby Monkey.  He kept wanting to know what he looked like.

First, with the Sharpie marker on his head.

sharpie

Then, with all the wires attached.

eeg

He did great.  The test was 40 minutes.  Part of it was just him laying there, watching a video.  Then, he had to blow a shiny pinwheel for 5 minutes.  Then, he had to have a strobe light flashing in different intervals for another 5 minutes. 

There were lots of squiggly lines on the screen and neither Real Man nor I have a clue what any of them mean.  The neurologist said we can call on Friday for the results.  Story of our life right now…hurry up and wait.

So, as of today, I have no more answers for anyone than I had yesterday.  But, I can tell you that Baby Monkey is an absolute trooper and a pleasure to be with, under any circumstance.

September 8, 2009

Real Scary

Filed under: Uncategorized — Amy @ 9:10 am
Tags: , , , , , ,

So, Labor Day started out like any other holiday.  We slept late…wait, no we didn’t.  The monkeys were up at the crack of dawn, which means so were we.  But that’s okay.  They’re fun monkeys.

We played in the morning, inside and outside.  I cooked up some sausage for two batches of pasta and meat sauce and put it in the freezer.  We did laundry.  You know…the usually puttering stuff you do on Labor Day.

Then I took Monkey Girl for a haircut.  When we got home, we all read some library books together.  We had a date for dinner at my parents at 4:00, so around three, I gave the boy monkeys their bath and Monkey Girl took a shower.  We put on their jammies and were ready to go.  (We figured to do baths and jammies beforehand, so when we got home we could read books and go right to bed, as it was a school night.)

We hopped in the car and started driving.  We hadn’t gone far when Baby Monkey called from the backseat of the van, “Mommy! Daddy!  Look at my head!”  We turned around and his head was perfectly still, but his eyes were rapidly darting back and forth.  Rapidly is an understatement.  His eyes were moving back and forth faster than it is humanly possible to actually move your eyes.  Real Man held out his finger and said, “Look at my finger,” and Baby Monkey grabbed the sides of his head to try to stop his head from moving, which was unsuccessful, since it wasn’t his head that was moving at all.  It was his eyes, but he didn’t seem to understand that. 

I would say the whole thing lasted about 45 seconds.  Finally it stopped and Real Man and I just looked at each other.  It was pretty clear that Baby Monkey had just had some type of seizure.  Real scary.

So, we took the big monkeys to my parents and dropped them off, then took Baby Monkey to the ER.

I hate the ER.  I especially hate the pediatric ER.  There is always an adult crying and I’m always so incredibly sad for them because I know they are hurting because a child is in pain.  There is nothing sadder to see than a sick child, particularly because they are usually being so brave about it.  The pediatric ER breaks your heart, and it takes a really special type of person to work there.

We finally got a room, and we settled in.  The nurse came in and checked him out.  She asked if he had taken his cute pills, because he was the cutest little guy she’d ever seen.  About 5 minutes later, some other woman came in and said that the nurse said she had to come look at the cute guy.  10 minutes after that, someone else came in for the same reason.  So, that made him feel special.  And really…he is ridiculously cute.

The doctor came in and asked a bunch of questions.  She checked him out and said she wanted to consult with another doctor.  Nothing like waiting.  I understand and am glad that she was consulting with someone.  However, not knowing is torture.

Then, the other doctor came in and checked him out.  More consulting.

Long story short, they think that the odds are that he had a seizure.  The other possibility is that he had some type of vertigo episode which would be a result of a childhood migraine (my mother and I are both migraine sufferers), however, he hasn’t complained of any head pain.  So, we have to go see the neurologist this week.  The office opens in a few minutes and I will call then.

I’m home with him today because we need to keep an eye on his eyes for today and it’s easier to do in a one-on-one setting than it would be at daycare.  However, if today is fine, tomorrow he can go back to school. 

He seems to be fine.  He was fine as soon as it was over last night.  He’s just a happy-go-lucky little monkey.  Kids are amazingly resilient.  Much more so than adults.  He never whined, complained or looked at his watch.  He said thank you to the nurses and doctors.  He was disappointed he didn’t get to have spaghetti at his grandparents and didn’t get to play at their house.  But, he rolled with the punches, smiled at everyone and made the best of his situation.

I think we could all learn some important life lessons from our children.

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