My Real Life

October 8, 2009

Real Relief

Filed under: Uncategorized — Amy @ 7:27 am
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Three days in the hospital and the results are good.

EEG clear.  MRI clear.

This means we don’t know anymore than we did on Sunday, but we do know what it isn’t, and at this point, that’s major.

I’m not going to bore you with every detail of the stay, but I do have a few things to say.

First of all, the bravery of Baby Monkey leaves me speechless and moves me to tears.

Despite the fact that he is terrified of loud noises (remember this post?) he didn’t even flinch when they hooked him up to the 20 EEG wires with glue and a loud dryer.  He just lay there, like this…

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..and occasionally made silly faces like this…

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Once the wires were on and the head was wrapped in bandages and he was tethered to the wall for three days, his smile never left his face.  He stayed busy with the toys they brought him and the books and game we brought from home.

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So, let’s be honest…any food that I don’t have to prepare tastes fabulous.

However, the food at this hospital was unbelievable.

Here’s Baby Monkey and his breakfast from Day 2.  Waffles covered in whipped cream with strawberries, bacon, vanilla yogurt, an orange, milk, blueberry muffin, orange juice, and corn flakes.

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And here’s my lunch from the same day.  Is this not one of the most beautiful fruit platters you’ve ever seen?

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Yeah, it was all fantabulous.

Back to our regularly scheduled brag about Baby Monkey.

On day 3 when they used a very smelly solvent and scissors to get it all off of his head, he smiled his way through it.

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Every doctor and nurse and hospital staff member that he came in contact with said that he was the most laid-back, best behaved patient they had ever treated.  They couldn’t believe that, at 3, he took it all in stride.  I was so freaking proud of that boy.  Particularly when they couldn’t find a vein for the IV and they just kept jabbing away until they got it and while he didn’t smile at that, he also didn’t make a fuss.  Just snuggled into Mommy and dealt.

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And, of course, in the end, he smiled all the way home.

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October 6, 2009

Day One

Filed under: Uncategorized — Amy @ 6:52 am
Tags: , , , , ,

So, day one is done and Baby Monkey did great.
We played games, read books, did puzzles, watched movies and had a mice day together.
He’s a trooper.
They wanted him to be sleep deprived as that often triggers seizures, so we were up until 2 am.
The only bad part was that his pulse oxygen monitor kept coming off of his finger while we slept, waking me up with loud beeping every half hour. So, I’m more than a little sleep deprived! The good news is that once he was out, he was out.
We’ll be here until Wednesday. It’s a nice hospital. I’ve only been in the one where I gave birth to all the monkeys. They sent us here because they said thee wouldn’t be as many sick kids and it is quieter. They were right
So, I’ll let you know how today and tomorrow go. They decided to do the MRI last, so I won’t know those results for awhile.
Thanks to you all for your well-wishes. They are much appreciated!!!

September 26, 2009

Update on Baby Monkey

Filed under: Uncategorized — Amy @ 7:27 am
Tags: , , ,

So, while the questions pour in, I figured I’d give you an update on Baby Monkey.

He had another “episode” last Saturday morning.  We took him into the neurologist on Monday and the two that we’ve seen can’t seem to agree on a treatment.  One wants to put him on anti-seizure medication.  The other says he’s too little and that he’s not convinced it’s a seizure.

So…next Monday and Tuesday (5th and 6th), he and I are checking into the hospital.  They will sedate him and do an MRI, then they will hook him up to the machines for 48 hours to do a 48 hour EEG.  We are hopeful that this will give us some answers.  If it happens again before then, they will put him on the medication to cover all the bases.  I’m hopeful that won’t happen.

For now, he’s fine, though, and continues to be my happy-go-lucky little Baby Monkey.  That’s the good news and that’s what keeps me going until we get some answers.

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